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Stalker
My daughter’s heart is a ticking time-bomb with a fuse of indeterminable length. It could blow at any minute. Hypertrophic Cardiomyopathy. This will be her stalker, prowling along behind her for all of...
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Five Things You Should NEVER Say to a Mother of a Special Needs Child!
I know the comments you are about to see are well-meaning, but quite frankly, they’re patronising, and insensitive, at best. We mothers of special needs kids get sick of hearing them. We don’t want...
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Epiphany
This week, I experienced a kind of epiphany. I was driving back from our local hospital. I had attended an AFO (leg brace) fitting with Carys, during which she screamed holy murder throughout, when in...
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Riding the Wave
It occasionally seems to me that some people think raising a child with special needs must be a romantic and heroic thing to do; they give you that look which says you’re doing something noble and...
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Perfect
I first became aware of this strange human condition in junior school. We had been set a project by the art teacher. I wanted my picture to be perfect, the best I could make it, so I was most taken...
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